Table 3 Summary table of themes from survey respondents’ strategies to ascertain and support data quality of the target population. Blank spaces indicate no reported strategies
Theme | Ascertainment strategies | Data quality strategies |
|---|---|---|
Collaboration | Data | Data |
• Compare and share | • Use other data sources | |
Clinical and community services | Health professionals | |
• Building relationships and awareness | • To confirm diagnostic information | |
Family | ||
• Consent to contact families to confirm/update data | ||
Systems | Standard protocols / systems | |
• Electronic registration system | ||
• Standardized data collection system | ||
• Data management plans | ||
Data collection processes | ||
• Double data entry | ||
• Data linkage | ||
Post data collection processes | ||
• Identify outliers | ||
• Quality assurance | ||
• Built in validations and completion checks within data entry system | ||
• Primary source verification | ||
• Data comparison | ||
• Receive feedback | ||
Update systems | ||
• National quality improvement projects | ||
• Update services | ||
• Semi-automated data import | ||
Health provider/service | ||
Understanding and valuing the register | Reporting | |
• Champions | • Compare data | |
• Ethics approval | • Quality audits | |
• Reporting | • Validation audits | |
• Newsletters | • Data quality indicators | |
• Infographics | • Monitor change/trends | |
• Annual reports | Post data collection processes | |
• Reminders | ||
Registration process | • Feedback to stakeholders | |
• Opt off/out consent | ||
• Dedicated staff | ||
• Registration via health professionals, other service providers, online and self-registration | ||
Data collection | ||
• Electronic data collection for ease of access | ||
• Assisted data entry | ||
Work force | Workforce development | |
• Annual workshops | ||
• Data team training and support for data collectors | ||
• Coordinator as advisor to data collectors |